May 12 is Fibromyalgia Awareness Day, and there are many ways you can help. The chronic pain syndrome is experienced by between 2 and 8% of people, and there’s no universal treatment. Learn more here!
May 12 is Fibromyalgia Awareness Day or Advocacy Day. This is a big deal because between 2 and 8 people out of a hundred suffer from the condition. Fibromyalgia is a medical condition that causes widespread pain and heightened response to pressure along with tiredness, joint pain, sleep problems and memory loss.
There’s no reliable way of diagnosing the chronic pain experienced by patients with fibromyalgia, and there are few efficient treatments to tackle the many symptoms suffered by people with the disease. Depression, anxiety and posttraumatic stress disorder seem to be related to the development of the painful disease, so we’re all exposed to it. Although the condition was defined in 1990, there are many things we don’t know about the disease; it’s incredibly hard to fight!
Recent studies suggest when you have fibromyalgia, there’s a problem with how the body manages pain signals throughout the nervous system. However, there’s still a lot of misinformation out there, making May 11 a vital day to educate the public, and most importantly, to make the government act on the matter. Public educational programs, medical research and the revision of alternative pain treatments are critical for people who have fibromyalgia.
This is a day to educate people, especially family and friends of patients suffering the condition since this is somewhat of an invisible illness. People with fibromyalgia don’t look sick, but they feel awful, which leads to people without knowledge about the disease thinking that there’s nothing wrong with their relative or friend.
Governments and sometimes even physicians don’t take the condition seriously, mainly because it’s hard to diagnose and treat. There’s much to do when it comes to awareness about fibromyalgia.
History of Fibromyalgia Awareness Day
Properly known as Fibromyalgia Advocacy Day, this important date results from educating the public about the condition and asking for more research, education programs and accessibility to alternative pain care.
In 2019 the Fibromyalgia Awareness Day was launched as a joint effort between Looms for Lupus, Community Movement Coalition, Men with Fibromyalgia, My Several Worlds, Heart, Faith & Strength, Fibromyalgia Pain Chronicles, and the Veteran Voices for Fibromyalgia.
With the hashtag #SupportFibro, this special day is more than good thoughts; it’s raising the voice to get an answer from the United States government to take fibromyalgia seriously and answer for fibromyalgia patients and their families.
Educate legislators and staff on fibromyalgia and build relationships to make a change are some of the goals of the advocacy day and include public awareness campaigns with proclamations, regional meetings and town halls.
How to Commemorate Fibromyalgia Awareness Day
Wear something purple to support fibromyalgia patients, and make the most out of the many workshops, lectures and events organized during the entire month of May. Let’s make the terrible condition a health priority!
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